|
4/9/2010 3:26:06 PM
|
topic:
Asperger Syndrome - Volatility of Behaviors
miamirn
Posts 40
|
Hi, So glad to hear from you. Of hand, I have a book you might be interested in (if you don't have it already). It's a little pricey and I looked all over the place for it and finally gave in and bought it at Amazon. The name of the book is, "Teaching Children With Autism to Mind-Read, A Practical Approach, by Patricia Howlin, Simon-Cohen and Julie Hadwin. The authors are pioneers in the field, you can't get better quality than this. I can tell you about the "Theory of Mind" concept in another post. Don't have time now. I would like to know the Facebook site you go to. I would very much like to check it out for myself. Thanks for your answer to my post. I appreciate it. Elona
|
|
4/9/2010 2:10:59 PM
|
topic:
Asperger Syndrome - Volatility of Behaviors
gln3k
Posts 5
|
Hi Thanks so much for taking the time to write to me, I always read your comments and they are very helpful I do worry a lot, but since he was two years I haven't stop taking him to every therapy available and thank God he is doing great, give me the names of the books and any videos or movies that you can recommend. I work at a day care were we see many kids that are different and the parents are blind and do not want to hear about the help they can get, I am going to pass the information of parent to parent to the parents at our center and I also found a great group in facebook for Aspergers and Autism, they post a subject every night and people comment and is supper interest.
Again Thanks so much hope to keep hearing from you.
|
|
4/8/2010 12:46:09 PM
|
topic:
Asperger Syndrome - Volatility of Behaviors
miamirn
Posts 40
|
Aww. I feel sad for you. But try not to worry too much. You sound like your a really good Mom! Very supportive. I think that's the most important.
I think that many people are really scared about disabilities. I guess, I've lived with my children and worked with so many disabled children that I've grown accustomed to seeing people as just people with differences. It reminds me of a story in my childhood. My Mom had a best friend. They were really close and my Mom's friends mother would come to visit us often. We all used to call her Mama so and so (for the sake of anonymity). Mama wasn't very pretty. Actually she was very plain. Truthfully, she was the ugliest woman I had ever seen. But she was a very kind and sweet lady. I would look at her sometimes and wonder how she got to be so homely. As the years passed we had many good times together. She would tell me stories and I grew close to her, like she was my own family. One day I looked at her and I saw that her face had changed, she no longer looked so ugly. I was a child and full of wonder. I thought, I remembered her as ugly and I knew she hadn't changed. She had the same ugly face, but it was no longer ugly to me. Her features looked beautiful to me. That was the first time I experienced what inner beauty was. It has happened to me many times since with people. Sometimes people look ugly, they act ugly, but when I get to know them they aren't ugly at all. They're really beautiful and different. So many people have experienced what I have. It's not uncommon. I just thought that I would relate this story to how people look at disabilities. At first appearance people with disabilities look ugly, may seem to act ugly, but really, truly they beautiful. Even the disability itself is beautiful. You have to just get by the outward appearance of it.
I know that if you look at your son and search for the right school, get him the right accommodations, and the right teachers, things will be ok. I can't say it will be easy, and nothing is perfect, but try to have confidence in yourself, I believe you will find your way and your son will find his way, too.
I have a beautiful children. A 26 yr old son who has Aspergers, a 31 yr old daughter, who is undiagnosed, a 7 year old grandson, who has PDD-NOS(Autism) (In his case he is Asperger's with a language component) who I'm homeschooling for the first time this year; and myself, well, I suspect that I am PDD-NOS or am close to it. I have traveled far in my journey with myself and my family. It's been sad and difficult and exciting and joyous. Sometimes all at the same time. I don't fret any more about disabilities, nor am I fearful of them anymore.
My grandson is in pre-team in swimming, he excels in his academics and he's learning about the world from different points of view. The latter is the hardest. He is doing great. Not that things aren't hard or sad or difficult, but he is a happy, fun and interesting kid. Any time you want to PM me please do. I can also give you some book recommendations and some stories about what worked and didn't work with my children and grandson, oh I forgot, and myself. Lol.
I hope that I have helped in some small way. Parent to Parent is a great forum. I just wish more people posted. I'm hoping it will grow in time. Thanks for sharing your thoughts. I do appreciate them.
Elona
|
|
4/8/2010 11:54:37 AM
|
topic:
Asperger Syndrome - Volatility of Behaviors
gln3k
Posts 5
|
Hello I have been reading but never found the courage to write, I am in a big confusion and I need all the help I can get, My 6 year old Son was diagnose by a Neurology as Mild Asperger, he is doing extremely good, he is a great student A and B, he is in a swimming team not a great one but he is there doing his best, very good with his brother and sister. Recently I started getting fears as if I should get him the disability to get therapies more to help him communicate and deal with frustrations, He is very scare of hallowing and fireworks, also I am supper scare of putting him in a regular Middle school, he does not do well with crowds and unexpected situations, I just need to know if it is really better for them to have the disability I have heard they get the Medicaid and better school accommodations, I don't know I am so undecided I guess because some times I dough if he really is or not and I would not want to ruin his future.
Help me Please...
|
|
3/24/2010 8:31:02 AM
|
topic:
Play Dates/Outings/Social Group
rcaveda
Posts 1
|
marinemomkerry wrote:
we meet cutler ridge park sundays 3, drinks provided, special needs and regular kids
kerry 305 979 6307
park is wheelchair friendly
|
|
3/19/2010 8:08:47 AM
|
topic:
Transfer
aljoje
Posts 1
|
My family is planning to move to Miami Dade County....I will like to know if the kids will drop one year of school
1st child --- last year of High School
2nd child- Seventh Grade
3rd child- Nineth grade
Your advise will be appreciated.
|
|
3/5/2010 6:10:01 PM
|
topic:
SUPPORT GROUP FOR PARENTS OF KIDS WITH CP
eli1212
Posts 1
|
hi everyone,
I came cross this site, and boy am I glad, I have 7yr old son with cp, I'm a singel parent, I'm looking for a support group. I would like more information on our group. please contact me @
elisazuniga@comcast.net
|
|
2/19/2010 9:32:11 AM
|
topic:
Play Dates/Outings/Social Group
marinemomkerry
Posts 3
|
we meet cutler ridge park sundays 3, drinks provided, special needs and regular kids
kerry 305 979 6307
park is wheelchair friendly
|
|
2/13/2010 1:50:26 PM
|
topic:
SUPPORT GROUP FOR PARENTS OF KIDS WITH CP
marinemomkerry
Posts 3
|
just found this site, had called PTP before and fiddlers, UCP, lighthouse fo rblind, got nowhere at this point. but just discovered a parent group feb 16
i have to bring my 9 year old (he will be 10 monday) as he is wheelchair bound, blind and speech impaired, motor impaired, though he loves other kids and cognitively he is his age or close to it and laughs alot. he had a bone marrow transplant 10/08 for advanced x-ALD (went to U of Minnesota for that) but even with transplant declined. working towards some sort of recovery. we have home bound teacher from merrick who would provide nothing else. theres not much she is able to do with hiim but he adores her. i work with him everyday myself. he lost all his abilities between march and july 09. go to a couple places for therapies. none of the schools would take us, too many impairments, although with therapy, intensive, could recovery alot. best school ive ever seen, even has this rare disease there(some of the kids), is Oak Park elementary in sarasota. was going to gymboree for music but quit once they wouldnt allow me to sit in the gym part and do his stretching. can understand why but it still didnt work for us.
looking forward to meeting other parents of special needs kids
marinemomkerry@gmail.com
|
|
2/13/2010 1:44:11 PM
|
topic:
We'll be moving to Miami next summer
marinemomkerry
Posts 3
|
if i could i would move my son to sarasota, fla for Oak Park elementary, public school. depends on disabilities i guess but alot of parents like gulfstream elementary. my son goes for therapy at carpe diem. he is vision,speech, mobilitiy impaired due to a neurological disease (ALD)
marinemomkerry@gmail.com
|
|
pages:
1 2
|