5/22/2009 11:15:55 AM permalink
samspurpose Posts 3	I have been wanting to start a support group for parents (both men and women) of children with Cerebral Palsy. If there is anyone else interested, please contact me. Thanks, Michelle
	5/22/2009 2:00:08 PM permalink
liatcohen Posts 1	Hi, My name is Liat and I think it's a great idea. One of our 3 kids has CP and I find myself every day facing so many questions and dilemmas that I would love to share with other parents.
	5/22/2009 5:22:31 PM permalink
samspurpose Posts 3	Liat: We are working hard to get a support group together that will be sponsored by the foundation my husband and I started (Samantha's Purpose). As soon as I get it organized, I will post the information here. If you want to get in touch with me directly, you can e-mail me at garc1458@bellsouth.net Michelle
	5/28/2009 9:25:59 PM permalink
Isa Posts 8	Liat and Michelle: I am the Executive Director of Parent to Parent of Miami and my daughter Daniela is 26 years old and has CP. I think it is wonderful that you are considering starting a support group. If you need a place to meet we can certainly provide the office space. There is a great need to share information about what works, wheelchairs, assistive technology and most of all the joy of parenting our amazing children. Relationships, sibblings and much more. So excited to see that the first families to respond to the forum ae those so close to my heart. Isabel
	7/4/2009 9:45:29 AM permalink
andca2155 Posts 2	My nephew has cp when you group will start meeting and were can you go in miami to have support
	7/6/2009 9:23:02 PM permalink
Guest	GREAT NEWS!!!! We have opened our Samantha's Purpose office and our first support group meeting will be on Wednesday, September 16th, beginning at 7:00 p.m. Please send an e-mail to me at mcg@samanthas-purpose.org to let us know if you will attending. We would like to have an idea of the head count so we can be properly prepared. Thanks so much and I look forward to meeting everyone!!!! Michelle
	7/10/2009 8:42:45 PM permalink
Guest	Michelle: Please send me the information about location, so that we can send it to the families as part of their information packets. My email is igarcia@ptopmiami.org
	11/15/2009 4:40:17 PM permalink
maritza Posts 1	Hi, My name is Maritza. My daughter is a 33 year old angel with CP . I would like to know when and where parents will meet. If I can be of help creating this group, I would be glad to do it. If we want to meet at my house I would consider that as a possibility. The best times for me to meet outside of my house is Monday through Friday Between 2pm and 4 pm. I f you want to get in touch with me directly, you may e-mail me at: Maritzaele@aol.com
	11/16/2009 5:26:46 PM permalink
yrodriguez Posts 16	Hi Maritza, Thank you for contacting Parent to Parent of Miami's forum. The following is the webiste for the support group that you may be searching for. I did want you to know that we also have support groups in our office. You can go to the events page of our website and see the dates available. Thanks again and good luck www.samanthas-purpose.org Yami -- Yamilet R
	2/13/2010 1:50:26 PM permalink
marinemomkerry Posts 3	just found this site, had called PTP before and fiddlers, UCP, lighthouse fo rblind, got nowhere at this point. but just discovered a parent group feb 16 i have to bring my 9 year old (he will be 10 monday) as he is wheelchair bound, blind and speech impaired, motor impaired, though he loves other kids and cognitively he is his age or close to it and laughs alot. he had a bone marrow transplant 10/08 for advanced x-ALD (went to U of Minnesota for that) but even with transplant declined. working towards some sort of recovery. we have home bound teacher from merrick who would provide nothing else. theres not much she is able to do with hiim but he adores her. i work with him everyday myself. he lost all his abilities between march and july 09. go to a couple places for therapies. none of the schools would take us, too many impairments, although with therapy, intensive, could recovery alot. best school ive ever seen, even has this rare disease there(some of the kids), is Oak Park elementary in sarasota. was going to gymboree for music but quit once they wouldnt allow me to sit in the gym part and do his stretching. can understand why but it still didnt work for us. looking forward to meeting other parents of special needs kids marinemomkerry@gmail.com
	3/5/2010 6:10:01 PM permalink
eli1212 Posts 1	hi everyone, I came cross this site, and boy am I glad, I have 7yr old son with cp, I'm a singel parent, I'm looking for a support group. I would like more information on our group. please contact me @ elisazuniga@comcast.net
	3/11/2010 9:26:21 PM permalink
Guest	Hi! Parent to Parent of Miami has a support group that is facilitated by a family therapist. However, it is not disability specific. There is information on the website about Sammantha's Purpose. They were in the process of lauching a support group for families who have childre with CP. Regarless, if you need support - you can always call Parent to Parent of Miami at 305-271-9797 , we can get you in touch with other parents that have children with CP.
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