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5/23/2009 6:12:53 AM
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jrd191
Posts 1
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My son goes from from being ok to totally unacceptable behavior and I am clueless as to the triggers. He says he likes to bother people and of course this is mortifying for all concerned. I'm beginning to think there is more than Asperger. He is also very negative toward women (does not want women coaches for swimming) and yesterday while doing a school project about good citizenry he cut off the head of the woman who was being "helpful" to a group of children. He just turned 9 in March. I am very concerned.
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5/26/2009 10:00:36 PM
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miamirn
Posts 40
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Hi,
I have a son who has Asperger's Syndrome. He is 25 years old. Having problems with anger is not uncommon. Especially when children are young. There is a book written by Tony Attwood. He is a clinical psychologist and author. He has written extensively about Asperger's Disorder The book is called "The complete Guide to Asperger's Syndrome (ISBN1843104954) On page 143 you will find a section on anger. You might find it helpful. I would recommend you seek a good clinical psychologist, that you know has lots of experience with Aperger's. Get your son tested and then take him to a good psychiatrist, that will work with the psychologist in helping your son. First thing to do is get a diagnosis(s). But do your research on these professionals first. There are many professionals that claim to be experts in the field of Asperger's, because it is the trend lately. It takes a good 10 years of experience for a professional to be an expert in the field in my opinion. I don't know what your insurance and finances are, but if covereage and money is scarce, it's worth it to save up for a few months and in the meantime see whomever you think is best for crisis counselling. The book is good. It will help you understand a lot of things you have never thought about. I would highly recommend it in your situation. Also before anything get in touch with CARD. "Center for Autism and Related Disabilities" they are a tremendous support resource. My 6 year old grandson who has PDD-NOS is going to a social skills group affilliated with the U of M and Nova University free of charge, because of an e-mail they sent me. Just google CARD and call them up to make an appointment to register. You can also just go to their site, but I highly recommend you register.
My best to you
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4/8/2010 11:54:37 AM
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gln3k
Posts 5
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Hello I have been reading but never found the courage to write, I am in a big confusion and I need all the help I can get, My 6 year old Son was diagnose by a Neurology as Mild Asperger, he is doing extremely good, he is a great student A and B, he is in a swimming team not a great one but he is there doing his best, very good with his brother and sister. Recently I started getting fears as if I should get him the disability to get therapies more to help him communicate and deal with frustrations, He is very scare of hallowing and fireworks, also I am supper scare of putting him in a regular Middle school, he does not do well with crowds and unexpected situations, I just need to know if it is really better for them to have the disability I have heard they get the Medicaid and better school accommodations, I don't know I am so undecided I guess because some times I dough if he really is or not and I would not want to ruin his future.
Help me Please...
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4/8/2010 12:46:09 PM
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miamirn
Posts 40
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Aww. I feel sad for you. But try not to worry too much. You sound like your a really good Mom! Very supportive. I think that's the most important.
I think that many people are really scared about disabilities. I guess, I've lived with my children and worked with so many disabled children that I've grown accustomed to seeing people as just people with differences. It reminds me of a story in my childhood. My Mom had a best friend. They were really close and my Mom's friends mother would come to visit us often. We all used to call her Mama so and so (for the sake of anonymity). Mama wasn't very pretty. Actually she was very plain. Truthfully, she was the ugliest woman I had ever seen. But she was a very kind and sweet lady. I would look at her sometimes and wonder how she got to be so homely. As the years passed we had many good times together. She would tell me stories and I grew close to her, like she was my own family. One day I looked at her and I saw that her face had changed, she no longer looked so ugly. I was a child and full of wonder. I thought, I remembered her as ugly and I knew she hadn't changed. She had the same ugly face, but it was no longer ugly to me. Her features looked beautiful to me. That was the first time I experienced what inner beauty was. It has happened to me many times since with people. Sometimes people look ugly, they act ugly, but when I get to know them they aren't ugly at all. They're really beautiful and different. So many people have experienced what I have. It's not uncommon. I just thought that I would relate this story to how people look at disabilities. At first appearance people with disabilities look ugly, may seem to act ugly, but really, truly they beautiful. Even the disability itself is beautiful. You have to just get by the outward appearance of it.
I know that if you look at your son and search for the right school, get him the right accommodations, and the right teachers, things will be ok. I can't say it will be easy, and nothing is perfect, but try to have confidence in yourself, I believe you will find your way and your son will find his way, too.
I have a beautiful children. A 26 yr old son who has Aspergers, a 31 yr old daughter, who is undiagnosed, a 7 year old grandson, who has PDD-NOS(Autism) (In his case he is Asperger's with a language component) who I'm homeschooling for the first time this year; and myself, well, I suspect that I am PDD-NOS or am close to it. I have traveled far in my journey with myself and my family. It's been sad and difficult and exciting and joyous. Sometimes all at the same time. I don't fret any more about disabilities, nor am I fearful of them anymore.
My grandson is in pre-team in swimming, he excels in his academics and he's learning about the world from different points of view. The latter is the hardest. He is doing great. Not that things aren't hard or sad or difficult, but he is a happy, fun and interesting kid. Any time you want to PM me please do. I can also give you some book recommendations and some stories about what worked and didn't work with my children and grandson, oh I forgot, and myself. Lol.
I hope that I have helped in some small way. Parent to Parent is a great forum. I just wish more people posted. I'm hoping it will grow in time. Thanks for sharing your thoughts. I do appreciate them.
Elona
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4/9/2010 2:10:59 PM
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gln3k
Posts 5
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Hi Thanks so much for taking the time to write to me, I always read your comments and they are very helpful I do worry a lot, but since he was two years I haven't stop taking him to every therapy available and thank God he is doing great, give me the names of the books and any videos or movies that you can recommend. I work at a day care were we see many kids that are different and the parents are blind and do not want to hear about the help they can get, I am going to pass the information of parent to parent to the parents at our center and I also found a great group in facebook for Aspergers and Autism, they post a subject every night and people comment and is supper interest.
Again Thanks so much hope to keep hearing from you.
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4/9/2010 3:26:06 PM
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miamirn
Posts 40
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Hi, So glad to hear from you. Of hand, I have a book you might be interested in (if you don't have it already). It's a little pricey and I looked all over the place for it and finally gave in and bought it at Amazon. The name of the book is, "Teaching Children With Autism to Mind-Read, A Practical Approach, by Patricia Howlin, Simon-Cohen and Julie Hadwin. The authors are pioneers in the field, you can't get better quality than this. I can tell you about the "Theory of Mind" concept in another post. Don't have time now. I would like to know the Facebook site you go to. I would very much like to check it out for myself. Thanks for your answer to my post. I appreciate it. Elona
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4/12/2010 9:16:22 AM
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gln3k
Posts 5
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Thanks again, the facebook page is http://www.facebook.com/home.php?#!/aspergersawarenesspage?ref=ts
I will look for the book, If the link does not work I just put on the search Aspergers and they have a few pages open, I just went in the one with more people is call Asperger's Awareness Page, it is great,
Have a great day.
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4/18/2010 10:59:21 AM
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gln3k
Posts 5
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I recomend this to all.
http://www.aspergerssociety.org/radio.htm
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